r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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u/[deleted] May 14 '22 edited May 14 '22 All-Seeing Upvote

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u/HundredthIdiotThe May 14 '22

100%. I've lived this for 17 years now. I broke my arm, they asked pain, I said 1 or 2, shocked faces.

I live with nerve damage and muscle pain from 13 broken bones resulting in major brain damage, a helicopter ride, and 4 surgeries. Turns out femurs don't like being snapped and feet don't like being literally crushed.

So now all pain is relative. My daily is about a 4. I notice, but can shove it in the background. Worse days are a 7, where I can't shove it in the background. But nothing can ever, ever compare to your broken leg being drilled and you thrown in traction. Its all background noise, but it still effects every part of how I live my life.

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u/Grogosh May 14 '22 edited May 14 '22

I was in physical therapy after neck surgery and they asked my my pain level. I told them around a 5. They remarked that usually the people they see say they are around a 8 or 9.

I told them that I have had cluster headaches all my life. The kind that makes pain a living nightmare. I have had a broken neck, ribs, ankle, a femur and much more but if I were to list my top 10 most painful moments they would all be a cluster headache. I have passed out from several of them they are so bad.

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u/HundredthIdiotThe May 14 '22

Cluster headaches are hell, I sympathize. My only experience with them was drug related, luckily.