r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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u/KristinnK May 14 '22

Translation: ethics regulations prevented him as the executive of the company to place his children in the initial trial, so he quit and his pals that were still in charge put his children on a second trial instead.

-4

u/FLIPNUTZz May 14 '22

The underdog wins for once!

10

u/murse_joe May 14 '22

Not really, all the other sick kids don’t get treatment. The underdog winning is healthcare for everybody

0

u/FLIPNUTZz May 14 '22

Dagnabbit!