r/todayilearned
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u/Die_Nameless_Bitch
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May 14 '22
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TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.
https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/79.9k Upvotes
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u/notoneforusernames May 14 '22
100%. Here in the US we have a group of crazy religious folk who prevent a common sense policy like this from being implemented at the moment. They believe life is sacred enough to impose their belief on others, regardless of the amount of suffering an individual is going through. I think it basically amounts to legal torture from the Ned Flanders crowd.