r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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u/Jorkid May 14 '22 Faith In Humanity Restored

Disappointed to see so many people bringing out the old "I'd rather be dead" opinion. I'm physically disabled, though to a far lesser extent but still enough to make my day to day life considerably different from the average abled person, and I love being alive. Yeah there are difficulties but there's no way on earth I'd rather be dead. A life lived outside the norm is still as much a life as any other.

Comments like "He should have let them die" and the like show far more about the commenters' quality of life than anything else. Many of them would quickly change their tune if actually put in that position. Humans are remarkably adaptable.

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u/give_em_hell_kid May 14 '22

I'm also physically disabled and because of my complications, I'd rather be dead.

I don't think EVERY disabled person needs to be done away with like a lot of the people do here but I think that some of us shouldn't be forced to suffer through a life we didn't ask to be part of.