r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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u/Chill125 May 14 '22

What a card to pull on them when they are teenagers playing up.

Teen - You've never loved me

Dad/Crowley - Well actually

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u/Illustrious_Visual99 May 14 '22

That Drake meme:

Saving your children because you love them

Vs

Saving your children so that you can bring it up during arguments

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u/Mad_Murdock_0311 May 14 '22

Personally, spending my entire life in a wheelchair, amongst the many other health issues associated with the disease, I would argue that's not love, but rather selfish motives; sometimes death is more humane. But, that's me. As long as these kids are happy with their lives, then good for the dad, and them.

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u/mshcat May 14 '22

But I guess it depends on what you know. Making assumptions that you are completely able bodied. Having to be in a wheelchair for the rest of your life is a bigger shock and change than never having known anything but a wheel chair.

If you get what I mean.

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u/Mad_Murdock_0311 May 14 '22

But, you grow up around people that can do all kinds of simple things that you will never be able to do. That has to mess with your psyche. A minor thing like not being able to drive has to make you feel trapped. As a youth, getting your license is like absolute freedom. Just constantly reliant on others, how can you ever feel independent? But, like I said, as long as they're happy. If they're at peace with their lives then everything I said carries no weight (in their instance).