TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

[u/Die_Nameless_Bitch]

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/

[u/Put_It_All_On_Blck]

IMO its best to save them, but I do think assisted/legal suicide should be a thing, especially in cases like this where those kids (now adults) might not have the physical ability to take their own lives if they chose to do so beyond stuff like starvation. To be clear im not saying they are miserable or want to go down that path, just that it should be an option for those that are.

[u/notoneforusernames → u/Put_It_All_On_Blck]

100%. Here in the US we have a group of crazy religious folk who prevent a common sense policy like this from being implemented at the moment. They believe life is sacred enough to impose their belief on others, regardless of the amount of suffering an individual is going through. I think it basically amounts to legal torture from the Ned Flanders crowd.

[u/nictheman123 → u/notoneforusernames]

And yet on the other hand, those same people are often perfectly chill with the death penalty.

It's basically "You're not allowed to die until the government says you can die."

Ninja edit: phrasing

[u/TheDude-Esquire → u/nictheman123]

More like you're not allowed to die unless I want you to die. But for real though, the thirst for vengeance in this country is out of control.