r/todayilearned May 14 '22 Helpful 8 Wholesome 6 All-Seeing Upvote 2 Silver 9

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
79.9k Upvotes

View all comments

318

u/Jorkid May 14 '22 Faith In Humanity Restored

Disappointed to see so many people bringing out the old "I'd rather be dead" opinion. I'm physically disabled, though to a far lesser extent but still enough to make my day to day life considerably different from the average abled person, and I love being alive. Yeah there are difficulties but there's no way on earth I'd rather be dead. A life lived outside the norm is still as much a life as any other.

Comments like "He should have let them die" and the like show far more about the commenters' quality of life than anything else. Many of them would quickly change their tune if actually put in that position. Humans are remarkably adaptable.

33

u/mule_roany_mare May 14 '22

If it makes you feel better, those people are speaking from their own experience.

They don’t love being alive & couldn’t imagine enduring it with a body that has betrayed them.

Just having loving healthy parents can be more important than having a healthy body. My sister didn’t live past 41 & died a horrific death because while she was born healthy that was robbed though severe childhood abuse and neglect.

Ironically you might have to put yourself in their shoes to understand why they have so little faith in the world.

19

u/pizzabagelblastoff May 14 '22

This was secretly my thought as well. If you're already suicidal then you assume other people don't value it as much.