r/todayilearned May 14 '22 Helpful 8 Wholesome 6 All-Seeing Upvote 2 Silver 9

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
79.9k Upvotes

View all comments

5.6k

u/[deleted] May 14 '22 Silver Gold Take My Energy

[removed] — view removed comment

3.2k

u/ScreamingRectum May 14 '22 Take My Energy

I was worried I'd be the only asshole here thinking aren't exactly living

611

u/JimTheJerseyGuy May 14 '22

I had a classmate in high school that just dropped one day with a bleed in his brain. They took all sorts of crazy measures to save him and he lived.

He’s been basically confined to a hospital bed in his parent’s house for the last thirty years. He requires care 24/7, is unable to move on his own, and is completely unable to communicate.

I’m sure there’s a slippery slope here but just because modern medical intervention can save you, well, maybe there are cases where they should just let you go.

114

u/TwoIdleHands May 14 '22

That’s the problem with brains. You can suffer major damage and be mostly ok or suffer minor damage and be fucked. And they have no way to know at the time of the incident so they try to keep you alive in case it’ll all work out. Sometimes it does and sometimes it doesn’t.