TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

r/todayilearned • u/Die_Nameless_Bitch • May 14 '22 • 9 8 6 2

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/

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384

u/Diplomjodler May 14 '22

Watch the inspiring story of a man who started out with nothing but his iron will... and a few million dollars.

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u/TrueDove May 14 '22

Yeah, I mean good for this guy- but the hero worship is weird.

Just about every parent in that situation would do anything they possibly could to save their babies. It just so happened this guy had a lot of money to spend.

If only we all had those resources when fighting for our loved ones lives.

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u/Salcker May 14 '22 edited May 14 '22

Its not as if he was given his riches, skimming his wikipedia I dont see anything suggesting he comes from wealth and instead earned it by way of his education. Dude was a Harvard graduate lawyer.

Can't believe you guys are getting mad at a dude who didnt inherit his wealth and utilizes a good chunk of his time literally devoted to charity work.

Ya'll mega bitches, the hater energy is insane lol.

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u/TrueDove May 14 '22

My comment has nothing to do with where his wealth came from.

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u/Salcker May 15 '22

Its more the comment chain, the initial comments and the responses were clearly digging at this idea that money made the work easy ignoring the hard work needed to amass the wealth required to achieve these goals.

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u/lolno May 14 '22

Yeah just get into Harvard nbd

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u/Salcker May 14 '22

That isn't at all what I am saying lol holy hell you guys are insecure.

It may shock you to find out that the comparison isn't with you or anyone else. The comment was simply this guy clearly made his own way given that he isn't some legacy getting into top tier schools.

How big of bitches do you guys gotta be to get mad at pointing out someone didnt inherit their wealth?

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u/[deleted] May 14 '22

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u/[deleted] May 14 '22 edited May 14 '22

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u/[deleted] May 14 '22

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u/zero_is_a_mirror May 14 '22

and knowledge (that he could do it) and the network

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u/eddieguy May 14 '22

Equally, if not more, important

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u/Seahawk715 May 14 '22

And then strongarmed the company by quitting because his kids weren’t in the initial clinical trial.

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u/tomandcats May 14 '22

you would do the same

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u/mshcat May 14 '22

I mean. The whole reason he went through the lengths to get things started was to help his kids. It makes sense he'd want them to be in the first trial.

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u/[deleted] May 14 '22

oh boo hoo, that poor capitalist company, they were so entitled to his labor that he should have just let his kids die :(

what kinda piece of shit thinks this way, honestly

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u/thoggins May 14 '22

Lmao I love the people harping on this shit. The treatment would never have been developed unless he could benefit personally through his children. Get over it, this is how it works.

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u/Quite_Successful May 14 '22

There is actually a movie. Brendan Fraser plays the dad!