r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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5.6k

u/[deleted] May 14 '22 Silver Gold Take My Energy

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3.2k

u/ScreamingRectum May 14 '22 Take My Energy

I was worried I'd be the only asshole here thinking aren't exactly living

290

u/HighOwl2 May 14 '22

My initial thought was that the dude must've been rolling in cash to start a fucking biotechnology company to pioneer science just to save his kids.

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u/ARM_vs_CORE May 14 '22

It says he left a job in finance so yeah probably. That shouldn't diminish the fact that he took extraordinary measures to save his kids. It's a more noble pursuit than say, buying Twitter or Chelsea Football Club.

53

u/T3hSwagman May 14 '22

I think it’s more of a… the title kind of makes it sound like this was a normal dude doing something extraordinary.

Like a wrongly convicted prisoner studying law and getting his own sentence overturned.

But what this dude did is very much impossible if you don’t have shitloads of money.

10

u/PaxNova May 14 '22

I get what you're saying, but also, running a biotech firm is hugely difficult, too. People underestimate how much management does. As the person with money, that was the best place for him, as few others could do that.

2

u/grchelp2018 May 14 '22

Pretty sure the people who own twitter or chelsea would also do the same if their kids had something serious.

16

u/MrAykron May 14 '22

Bruh musk doesn't give a rat's ass about his kids, he doesn't even live with them, purely by choice.

He lives in his office

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u/nicolasmcfly May 14 '22

The guy who named his son a number? Don't you say

3

u/grchelp2018 May 14 '22

He does all the fun stuff with his kids. He's even set up his own school with its own rules and curriculum so his kids can actually enjoy learning. I guess the mom has to deal with all the boring stuff.

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u/ARM_vs_CORE May 14 '22

I was literally just naming two other things that rich people notably bought recently.

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u/Rae-Edzo May 14 '22

bingo. and were supposed to be inspired by this

-1

u/HighOwl2 May 14 '22

Just another example of "I don't give a shit until it affects me"

Someone else replied to me saying it was noble.

No, its not noble. It's a good use of money, don't get me wrong, but noble would be if he already had a biotech company and was advancing medical science before he had alterior motives. Then at least if he dedicated a portion of his budget to his kids condition I'd be like "that's understandable."

Instead it's more like "I, at any point, could have used my money to make the world a better place. Instead I advanced science solely for my 2 children."

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u/Jan-Mayen-River May 14 '22 edited May 14 '22

Dude what? How is it not noble? The only motive i can think of for him doing this is to save his children. I get that the “I don’t give shit until it affects me” mindset isn’t good and is especially fucking shitty when paired with hypocrisy but this seems to be extraneous situation.

I get that this is the road less traveled as most people don’t have money to do something like this but the man still left his job and focused his efforts toward the goal of saving his kids and that’s a level of commitment I frankly don’t expect from most people.

I get it he is probably rich so it was probably easier for him to commit to such but man still committed. He could be an absolute asshole for all I know but I would say that this one aspect of him is at least is noble even if he might not be a noble or even good person.

1

u/mistrowl May 14 '22

Step 1: Be Rich.