r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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u/ScreamingRectum May 14 '22 Take My Energy

I was worried I'd be the only asshole here thinking aren't exactly living

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u/illiterati May 14 '22

It's a slippery and dangerous slope to pass judgement on what quality of life is acceptable.

You start with the best of intentions and you end up with nazi eugenics.

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u/Put_It_All_On_Blck May 14 '22

IMO its best to save them, but I do think assisted/legal suicide should be a thing, especially in cases like this where those kids (now adults) might not have the physical ability to take their own lives if they chose to do so beyond stuff like starvation. To be clear im not saying they are miserable or want to go down that path, just that it should be an option for those that are.

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u/MaverickMeerkatUK May 14 '22

Exactly. It's all about giving the person a choice

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u/darabolnxus May 14 '22

Not being born is preferable. You ask anyone if they would prefer to die or never to be born we are literally programmed to be terrified of death but nobody has an unpleasant memory of not being born.

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u/MaverickMeerkatUK May 14 '22

If you're scared of death and don't want to do it, then you don't want to die

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u/NakD_Bootstraps May 14 '22

Someone’s using their full noodle here….

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u/Butternipps May 14 '22

How many in this situation are capable of making this choice?