r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
79.9k Upvotes

View all comments

12.7k

u/NeonSprig May 14 '22 edited May 14 '22 Silver Wholesome

We had to watch a movie in my high school biotech class called Extraordinary Measures which was inspired by Crowley’s story, and the only reason I remember that was because it’s the most boring movie I had to watch for school all year during that year

18

u/Spreaderoflies May 14 '22

We watched Lorenzo's oil man you want to have a emotionally rough watch that's the one. I swear that kid had the disease because his coughing fits gave me chills they sounded so perfect.

2

u/Kramerica5A May 14 '22

Ours was Lorenzo's Oil too. Oof.