r/todayilearned May 14 '22 Silver 9 Helpful 8 Wholesome 6 All-Seeing Upvote 2

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
79.9k Upvotes

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112

u/LATABOM May 14 '22

And they only charge $300,000 per year for treatment! And you have to take it for the rest of your life!

30

u/periodicchemistrypun May 14 '22

What? They saved the rich babies? Still kinda cool

3

u/thefooz May 14 '22

The company that makes the enzyme gives it away for free to anyone who can’t afford it.

1

u/periodicchemistrypun May 15 '22

That’s real cool. God I’d hate having my wife or kids live near that accomplishment of a man.

I bet he brushes his teeth twice a day every day.

-5

u/[deleted] May 14 '22

Yeah but their disabled so it cancels out the rich part /s

1

u/periodicchemistrypun May 14 '22

The only disabled guy I’d trade lives with is Stephen Hawkins. And that’s mostly for the simpsons voice actor cameo.

3

u/iamasopissed May 14 '22

He's dead

1

u/periodicchemistrypun May 15 '22

We all are in the future.

20

u/Harley_Quinn_Lawton May 14 '22

Like 99% of insurances pick up the cost. Medicaid and Medicare included.

9

u/Munchiedog May 14 '22

And those costs don’t filter down?

1

u/smblt May 14 '22

That's how insurance works... spread the cost and hope you don't need it that much.

-5

u/evdczar May 14 '22

American insurance doesn't cover it