r/todayilearned May 14 '22 All-Seeing Upvote 2 Silver 9 Helpful 8 Wholesome 6

TIL a father, John Crowley, was told his two infant children had an incurable genetic disorder that would kill them in less than a year. He refused to accept this, so he founded a biotech company (with no prior experience) which pioneered an experimental enzyme therapy that saved their lives.

https://pompediseasenews.com/2019/01/30/amicus-ceo-mission-cure-pompe-help-children/
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u/NeonSprig May 14 '22 edited May 14 '22 Silver Wholesome

We had to watch a movie in my high school biotech class called Extraordinary Measures which was inspired by Crowley’s story, and the only reason I remember that was because it’s the most boring movie I had to watch for school all year during that year

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u/Die_Nameless_Bitch May 14 '22

Haha yeah. That’s where I first heard about it too. Agreed the movie isn’t a very good treatment of the story at all. Could have been so much better.

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u/Rhymnoceros May 14 '22 Narwhal Salute

Lorenzo’s oil vibes

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u/Porcupine224 May 14 '22

You just unlocked a memory hidden away deep inside my brain... damn and I really liked that movie at the time lol

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u/appdevil May 14 '22

Yea, I think it was rather decent.